Archive for the ‘Uncategorized’ Category

HCV Quest – The World Hepatitis Alliance Patient Survey on hepatitis C

Tuesday, November 18th, 2014

HCV Quest is a global patient survey, investigating the impacts hepatitis C can have on patients’ personal and social life as well as education and work and examining patients’ experience of care.

To learn more about HCV Quest and to fill out the survey, check the World Hepatitis Alliance website.

Now available! Presentations from the 1st International Hepatitis Cure and Eradication Meeting

Thursday, November 13th, 2014

To review all the presentations from the 1st International Hepatitis Cure and Eradication Meeting held in Toronto November 5th and 6th, 2014, click here.

Support the “Toronto Declaration”, presented at the 1st International Hepatitis Cure and Eradication meeting.

Thursday, November 13th, 2014

Click here for some background information about the Toronto Declaration, click here to read the Toronto Declaration and click here to support the Toronto Declaration.

Action Hepatitis Canada is now a member of the World Hepatitis Alliance (WHA).

Thursday, November 13th, 2014

To learn more about the WHA, check their website: www.worldhepatitisalliance.org/en/ .

Save the date! Action Hepatitis Canada (AHC) All-Members Update

Thursday, November 13th, 2014

Save the date! Action Hepatitis Canada (AHC) All-Members Update

Join other AHC members via teleconference Tuesday, December 9th, from 2 to 3 PM EST.

 

Patricia Bacon, Chair of AHC, will provide us with an update on AHC’s activities in 2014 and a preview of what’s being planned for 2015.

 

For details on joining the teleconference, please email: jrice@actionhep.ca.

 

Hope you can join us.

 

Jeff

AHC has a new look!

Thursday, September 25th, 2014

As Action Hepatitis Canada continues to expand, above is the new AHC logo.

Thanks to everyone who was involved in the development of AHC’s “new look”.

List of members updated

Tuesday, September 23rd, 2014

Action Hepatitis Canada is expanding as new members continue to join.

See the full membership list here.

Global Community Hepatitis Policy Report 2014 – World Hepatitis Alliance

Thursday, August 21st, 2014

The World Hepatitis Alliance has published a Global Policy Report which contains the results of surveys of ‘civil society’ groups around the world and their comments on the actions of their respective governments with regard to viral hepatitis. Action Hepatitis Canada provided input about Canada which can be found in this document. The executive summary can be read here and the full report here.

New cures for hepatitis C offer hope, but at what cost?

Tuesday, July 22nd, 2014

As we mark World Hepatitis Day (July 28th), people living with hepatitis C virus (HCV) have reason to feel hopeful. New cures for HCV are now available, and more effective treatment options will hit the market in the future. Despite the increased hope, there is concern. New cures are very expensive, raising questions about patient access to treatment.

How will treatment decisions be made?

Patricia Bacon, Chair of Action Hepatitis Canada, shares these patient concerns. “At one time, people living with hepatitis C had no choice. The ‘gold standard’ for treatment was a combination of two drugs that were not easily tolerated by many people, and only about half of those who were treated were cured. Now we have these amazing treatments that will cure almost everyone, yet the cost is outrageous – starting at $55,000 for a twelve-week course”. Bacon says because of the high cost of treatment, not all people can be treated. To do so would bankrupt provincial and territorial health programs. “So how will treatment decisions be made”, Bacon wonders?

Treatment prices must come down

In developing countries, government health programs negotiate huge reductions in the cost of treatments, allowing for more people to be treated. In the developed world, drug manufacturers believe that governments can and will pay much higher costs for drugs. After all, they argue, drug companies invest heavily in bringing a drug to market and are entitled to a reasonable return on their investment.

“We have a cure for a virus that kills hundreds of thousands of people worldwide every year”, states Bacon. “Very few drugs can guarantee they’ll take a life-long and sometimes life-threatening condition and wipe it out. Treatment prices must come down so that more people can be treated”.

About Hepatitis C

Hepatitis C, a virus that damages the liver, can cause debilitating symptoms, liver disease and early death, often going unrecognized, undiagnosed and untreated for years. It is poorly understood, with inadequately funded research, poorly supported prevention initiatives and limited access to treatment, care and support.

Action Hepatitis Canada (www.actionhepatitiscanada.ca), a national coalition of organizations, engages government, policy makers, and civil society to promote hepatitis B and C prevention, improve access to care and treatment, build health-professional capacity, and support community-based groups and initiatives.

AHC Media Release WHD 2014 07 22

WHO Hepatitis Resolution should spur Canada to create national strategy, says Action Hepatitis Canada

Thursday, June 19th, 2014

Toronto, Ontario – June 19, 2014 –Action Hepatitis Canada (AHC) applauds the action taken on May 22 by the 194 member states of the World Health Assembly, including Canada, to unanimously adopt a new resolution on hepatitis.

“Having the World Health Organization (WHO) adopt the resolution gives Canadians, and the millions of people worldwide living with hepatitis, greater hope that these diseases will be given higher priority by governments in Canada, and around the world,” says Patricia Bacon, Chair of AHC.

Hepatitis an epidemic globally and in Canada

Hepatitis is responsible for 1.5 million deaths worldwide every year. Up to 600,000 Canadians are estimated to be living with viral hepatitis, and many don’t know it. WHO urges its member states “to develop multispectral national strategies for preventing, diagnosing, and treating viral hepatitis.”

Call for expanded national strategy

“Canada needs a National Hepatitis Strategy that expands on the current Strategic Framework for Action developed by the Public Health Agency of Canada, “says Bacon.

Hepatitis B and C are viruses that damage the liver, and can cause debilitating symptoms, liver disease and early death, often going unrecognized, undiagnosed and untreated for years. They are poorly understood, with inadequately funded research, poorly supported prevention initiatives and limited access to treatment, care and support.

Bacon adds: “Our coalition has been calling for a national strategy since 2008. We hope that this development by WHO will be a catalyst for stronger action in Canada.”

Action Hepatitis Canada, a national coalition of organizations, engages government, policy makers, and civil society to promote hepatitis B and C prevention, improve access to care and treatment, build health-professional capacity, and support community-based groups and initiatives.